{"version":1,"type":"rich","provider_name":"Libsyn","provider_url":"https:\/\/www.libsyn.com","height":90,"width":600,"title":"EDS Ehlers Danlos Syndrome","description":"On this week's show we are speaking with Kristine Hoestermann, the founder of "FindYourRare" and she will be explaining how she was diagnosed with HEDS and where that diagnosis took her! Heeeeere's Kristine!   Allow me to introduce myself\ud83e\udd93My name is Kristine (kk). I am the CEO of RARE.\u2122 A brand that was born from my own frustrations following the onset of my symptoms in 2016. It never occurred to me I could wake up sick and never get better. That I would lose everything I knew without noticing. In the beginning of getting sick I experienced extreme isolation. I felt like I didn\u2019t fit in anywhere. Among symptoms that have yet to have to be attributed to a known disease\ud83e\uddecI have been diagnosed with EDS , POTS, and Autoimmune Small Fiber Neuropathy Secondary to Unknown Connective Tissue Disease \ud83c\udd97 That feels like a lot right? but I didn\u2019t look sick and that made it really hard for not only me to accept but also the world around me \ud83c\udf0d   I created RARE.\u2122 as a safe space for myself until I realized so many other rare disease fighters, chronic illness, chronic pain, invisible disease or any human needed that same thing. So I got to work and here we are. Together we can start to bridge the gap \ud83d\udea7   \ud83c\udd97More about the RARE. Girl behind the brand;  \ud83e\udd44I  am a fierce lover of Grey\u2019s Anatomy. Meredith Grey is my person. \ud83e\udd44You can be sure that I\u2019ll be either listening to Taylor Swift or True Crime.  \ud83e\udd44My favorite book is a Thesaurus \ud83e\udd44I am a loyal Ticondaroga Pencil user \ud83e\udd44I love to create & I am a huge nerd  \ud83e\udd44My Wardrobe can easily be mistaken for your grandmas & I love it   Change Starts Here. Connect With RARE.\u2122   \ud83d\udcf1Share With Us \ud83d\udd1b@findyour rare on all social platforms #findyourrare \ud83d\udecd Shop your purpose \ud83d\udd1b www.findyourrare.com \ud83c\udf99 Because We Are Strong Podcast \ud83d\udd1b www.bwspod.com \ud83d\uddf3 VPR Membership Club \ud83d\udd1b findyourrare.info\/vrp  \u2709\ufe0f Reach Out \ud83d\udd1b info@findyourrare.com   ","author_name":"PodcastDX","author_url":"https:\/\/www.PodcastDX.Com","html":"