{"version":1,"type":"rich","provider_name":"Libsyn","provider_url":"https:\/\/www.libsyn.com","height":90,"width":600,"title":"Episode 497 - Cynthia Neilson","description":"Cynthia Neilson shares her journey as a mother raising her daughter Claire, who was diagnosed with pulmonary arterial hypertension (PAH) at a young age. Cynthia recounts the challenges she faced navigating the medical system, the emotional toll of dealing with an unexpected diagnosis, and the difficulties of balancing family life while ensuring her daughter received the best possible care. Cynthia emphasizes the value of connection, resilience, and advocacy for families dealing with rare diseases. Learn more about pulmonary hypertension trials at&amp;nbsp;www.phaware.global\/clinicaltrials. Engage for a cure:&amp;nbsp;www.phaware.global\/donate&amp;nbsp;#phaware Share your story:&amp;nbsp;info@phaware.com&amp;nbsp;Like, Subscribe and Follow us:&amp;nbsp;www.phawarepodcast.com.&amp;nbsp;@phacanada ","author_name":"I'm Aware That I'm Rare: the phaware\u00ae podcast","author_url":"http:\/\/phawarepodcast.libsyn.com\/podcast","html":"<iframe title=\"Libsyn Player\" style=\"border: none\" src=\"\/\/html5-player.libsyn.com\/embed\/episode\/id\/33944687\/height\/90\/theme\/custom\/thumbnail\/yes\/direction\/forward\/render-playlist\/no\/custom-color\/87A93A\/\" height=\"90\" width=\"600\" scrolling=\"no\"  allowfullscreen webkitallowfullscreen mozallowfullscreen oallowfullscreen msallowfullscreen><\/iframe>","thumbnail_url":"https:\/\/assets.libsyn.com\/secure\/content\/181153582"}