{"version":1,"type":"rich","provider_name":"Libsyn","provider_url":"https:\/\/www.libsyn.com","height":90,"width":600,"title":"Prader-Willi Syndrome: Why Caregiving Moms Need Community and Support","description":"When your child receives a diagnosis, everything changes. In this heartfelt episode, Katie Taylor welcomes back Jessica Patay, founder of We Are Brave Together, to discuss the emotional realities of caregiving, raising a son with Prader-Willi syndrome and autism, and why supporting the mental health of caregiving moms is essential. Jessica shares how a mentor mom transformed her own journey after her son's diagnosis and how that experience inspired her to create We Are Brave Together, a thriving community supporting thousands of caregiving mothers worldwide. She also introduces her newest book,  Suddenly Brave Together, a collection of letters written by experienced caregiving moms to families navigating a new diagnosis. Together, Katie and Jessica explore the importance of community, finding hope through shared experiences, navigating the transition into adult healthcare, and why caregivers deserve just as much support as the children they care for. Whether you're parenting a child with a rare disease, disability, medical complexity, neurodivergence, or chronic illness, this conversation is a reminder that you never have to walk this journey alone. In This Episode: 1:58 \u2013 Meet Jessica Patay and her family's journey with Prader-Willi syndrome 5:45 \u2013 What is We Are Brave Together? 8:10 \u2013 Jessica's new book, Suddenly Brave Together 11:05 \u2013 The letter Jessica wrote to newly diagnosed moms 13:10 \u2013 Why caregiver mental health matters 15:55 \u2013 The mentor mom who changed everything 17:15 \u2013 How moms can become Connection Circle leaders 21:30 \u2013 Supporting moms navigating behavioral challenges 23:15 \u2013 Where to find Jessica's books and resources 24:15 \u2013 Transitioning from pediatric to adult healthcare 27:45 \u2013 Why caregivers still need a village after childhood 30:45 \u2013 Creating spaces where caregivers feel seen, not judged 32:45 \u2013 Why supporting moms strengthens the entire family Resources Mentioned \u2022 We Are Brave Together: https:\/\/www.wearebravetogether.org  \u2022 Learn about Connection Circles and caregiver retreats \u2022 Suddenly Brave Together and Becoming Brave Together Connect with Us   Instagram:&amp;nbsp;@childlifeoncall&amp;nbsp;+&amp;nbsp;@insidethechildrenshospital   Subscribe: Never miss an episode on&amp;nbsp;Apple Podcasts&amp;nbsp;or&amp;nbsp;Spotify.   Visit&amp;nbsp;insidethechildrenshospital.com&amp;nbsp;to search stories and episodes easily   Leave a Review: It helps other families find us and access our resources   Medical information shared in this episode is not a substitute for professional medical advice. Please consult your care team for guidance specific to your child and family. Keywords:&amp;nbsp;         Prader-Willi syndrome, We Are Brave Together, caregiver mental health, caregiving moms, special needs parenting, medically complex children, rare disease parenting, autism parenting, caregiver support, parent support community, new diagnosis support, disability parenting, family caregiving, pediatric to adult healthcare transition, Connection Circles, caregiver burnout, parenting after diagnosis, medically complex parenting, Jessica Patay, caregiving community         &amp;nbsp; ","author_name":"Inside the Children's Hospital | Parent Stories, Pediatric Healthcare &amp; What Families Want You to Know","author_url":"http:\/\/insidethechildrenshospital.com","html":"<iframe title=\"Libsyn Player\" style=\"border: none\" src=\"\/\/html5-player.libsyn.com\/embed\/episode\/id\/42182495\/height\/90\/theme\/custom\/thumbnail\/yes\/direction\/forward\/render-playlist\/no\/custom-color\/88AA3C\/\" height=\"90\" width=\"600\" scrolling=\"no\"  allowfullscreen webkitallowfullscreen mozallowfullscreen oallowfullscreen msallowfullscreen><\/iframe>","thumbnail_url":"https:\/\/assets.libsyn.com\/secure\/item\/42182495"}