{"version":1,"type":"rich","provider_name":"Libsyn","provider_url":"https:\/\/www.libsyn.com","height":300,"width":600,"title":"The Shadow Effect","description":"What happens when bleeding becomes so familiar that it no longer feels worth reporting? In the premiere episode of The Bleeding Edge, host Patrick James Lynch brings together patients, caregivers, clinicians, and researchers to explore the realities of living with Glanzmann thrombasthenia. Through personal stories and expert insight, they reveal how a lifetime of adapting to bleeding can quietly shape everyday life while much of its true burden remains unseen. Featuring Eliza Van Sweden, Amy Owen-Wyard, Kate Khair, and Dr. Guy Young, The Shadow Effect examines why understanding GT means looking beyond the bleed itself and listening to the experiences that too often go undocumented. Because before we can change the future of GT, we first have to see what has been there all along. Featuring: Eliza Van Sweden Amy Maiard Kate Khair Dr. Guy Young Presenting Sponsor: Hemab Therapeutics, visit hemab.org to learn more Show Notes:   One day at a time: Life with Glanzmann thrombasthenia \u2013 Qualitative results from the GT 360 study   UK Haemophilia Society   CHES Foundation    Glanzmann Thrombasthenia Research Foundation   \u200aGlanzmann Thrombasthenia Facebook Support Group   \u200aEquiPath Analytics    Haemnet   &amp;nbsp; Subscribe: The Bleeding Edge Podcast &amp;nbsp; Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook&amp;nbsp; BloodStream on X\/Twitter&amp;nbsp; BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok &amp;nbsp; ","author_name":"The Bleeding Edge","author_url":"https:\/\/www.bloodstreammedia.com\/the-bleeding-edge","html":"<iframe title=\"Libsyn Player\" style=\"border: none\" src=\"\/\/html5-player.libsyn.com\/embed\/episode\/id\/42079770\/height\/300\/theme\/custom\/thumbnail\/yes\/direction\/forward\/render-playlist\/no\/custom-color\/88AA3C\/\" height=\"300\" width=\"600\" scrolling=\"no\"  allowfullscreen webkitallowfullscreen mozallowfullscreen oallowfullscreen msallowfullscreen><\/iframe>","thumbnail_url":"https:\/\/assets.libsyn.com\/secure\/content\/204084600"}