{"version":1,"type":"rich","provider_name":"Libsyn","provider_url":"https:\/\/www.libsyn.com","height":300,"width":600,"title":"A candid convo with HTC nurse practitioner, Joe Stanco","description":"The FED UP Act is headed to Congress and could reshape how women and girls with bleeding disorders are diagnosed, treated, and supported! On the latest episode of BloodStream, Amy and Patrick sit down with Joe Stanco, HTC Family Nurse Practitioner and founder of the Hemostasis and Thrombosis Nursing Association, for a candid conversation about today\u2019s hemophilia care landscape and where it is headed next. We also unpack what this bipartisan legislation could mean for access, research, education, and equity in care. In this week\u2019s I\u2019m Fine segment, we explore the emotional weight of caregiving, the pressure to always show up for others, and what happens when your own care starts to fall to the bottom of the list. Advocacy, science, and lived experience all in one place. Listen now and subscribe to BloodStream Podcast wherever you get your shows. &amp;nbsp; Show Notes:  FED UP Act&amp;nbsp; &amp;nbsp; Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. &amp;nbsp; I\u2019m Fine is presented by @SanofiUS&amp;nbsp; #bloodstreammedia #raredisease #bleedingdisorders #podcast #chronicdisease #hemophiliacommunity #advocacy &amp;nbsp; Subscribe: The BloodStream Podcast &amp;nbsp; Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook&amp;nbsp; BloodStream on X\/Twitter&amp;nbsp; BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok &amp;nbsp; ","author_name":"BloodStream","author_url":"http:\/\/BloodStreamPod.com","html":"<iframe title=\"Libsyn Player\" style=\"border: none\" src=\"\/\/html5-player.libsyn.com\/embed\/episode\/id\/41615930\/height\/300\/theme\/custom\/thumbnail\/yes\/direction\/forward\/render-playlist\/no\/custom-color\/88AA3C\/\" height=\"300\" width=\"600\" scrolling=\"no\"  allowfullscreen webkitallowfullscreen mozallowfullscreen oallowfullscreen msallowfullscreen><\/iframe>","thumbnail_url":"https:\/\/assets.libsyn.com\/secure\/content\/202891385"}