{"version":1,"type":"rich","provider_name":"Libsyn","provider_url":"https:\/\/www.libsyn.com","height":90,"width":600,"title":"Psychosocial support and bye bye, BioMarin","description":"Bleeding disorders aren\u2019t just medical conditions \u2014 they\u2019re lived experiences shaped by resilience, community, and support. On this episode of BloodStream Podcast, Patrick James Lynch sits down with the WFH working group to explore why psychosocial care matters just as much as medicine and how human connections help people thrive.&amp;nbsp; Rocky Williams joins to share the power of positivity and what it truly means to be more than \u201cfine,\u201d inspiring the bleeding disorders community to dream bigger, aim higher, and embrace life fully. We also break down a major shift in gene therapy: BioMarin\u2019s decision to pull Roctavian from the market, what it means for patients, and why preserving critical clinical data is essential for ongoing research and safety.&amp;nbsp; Tune in for a conversation that blends science, mindset, and community \u2014 because living with bleeding disorders is about more than treatments, it\u2019s about life itself. Show Notes:  BioMarin pulls hemophilia gene therapy Roctavian  WFH Gene Therapy Registry LevelsMatter.com &amp;nbsp; Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. &amp;nbsp; I\u2019m Fine is presented by @SanofiUS&amp;nbsp; #bloodstreammedia #raredisease #bleedingdisorders #podcast #chronicdisease #hemophiliacommunity #advocacy &amp;nbsp; Subscribe: The BloodStream Podcast &amp;nbsp; Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook&amp;nbsp; BloodStream on X\/Twitter&amp;nbsp; BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok &amp;nbsp; ","author_name":"BloodStream","author_url":"http:\/\/BloodStreamPod.com","html":"<iframe title=\"Libsyn Player\" style=\"border: none\" src=\"\/\/html5-player.libsyn.com\/embed\/episode\/id\/40418425\/height\/90\/theme\/custom\/thumbnail\/yes\/direction\/forward\/render-playlist\/no\/custom-color\/88AA3C\/\" height=\"90\" width=\"600\" scrolling=\"no\"  allowfullscreen webkitallowfullscreen mozallowfullscreen oallowfullscreen msallowfullscreen><\/iframe>","thumbnail_url":"https:\/\/assets.libsyn.com\/secure\/content\/199592055"}