{"version":1,"type":"rich","provider_name":"Libsyn","provider_url":"https:\/\/www.libsyn.com","height":90,"width":600,"title":"Amy\u2019s History in Hemophilia","description":"Patrick and Amy sit down to hear her story\u2014how she first got involved in the bleeding disorders community back in 2003, and how patient advocacy became her passion. Along the way, they share laughs about their unexpected pasts as actors and the moments that shaped their paths. Also on this episode of BloodStream, our hosts also look back on the year in gene therapy, spotlighting patients, clinicians, and researchers who are redefining what\u2019s possible, including five-year insights from the HOPE-B study in hemophilia B. This episode is a celebration of hope, trust, and progress\u2014a reminder that hemophilia care isn\u2019t just about science, it\u2019s about people and the possibilities they create. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. &amp;nbsp; It\u2019s a Whole New World brought to you by @CSLBehring.&amp;nbsp; #bloodstreammedia #raredisease #bleedingdisorders #podcast #chronicdisease #genetherapy #healthcare #digitalhealth #biotech &amp;nbsp; Show Notes: Final Analysis of a Study of Etranacogene Dezaparvovec for Hemophilia B  https:\/\/www.nejm.org\/doi\/full\/10.1056\/NEJMoa2514332 &amp;nbsp; Subscribe: The BloodStream Podcast &amp;nbsp; Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook&amp;nbsp; BloodStream on X\/Twitter&amp;nbsp; BloodStream on Instagram BloodStream on LinkedIn BloodStream on TikTok &amp;nbsp; ","author_name":"BloodStream","author_url":"http:\/\/BloodStreamPod.com","html":"<iframe title=\"Libsyn Player\" style=\"border: none\" src=\"\/\/html5-player.libsyn.com\/embed\/episode\/id\/39830755\/height\/90\/theme\/custom\/thumbnail\/yes\/direction\/forward\/render-playlist\/no\/custom-color\/88AA3C\/\" height=\"90\" width=\"600\" scrolling=\"no\"  allowfullscreen webkitallowfullscreen mozallowfullscreen oallowfullscreen msallowfullscreen><\/iframe>","thumbnail_url":"https:\/\/assets.libsyn.com\/secure\/content\/197784690"}