{"version":1,"type":"rich","provider_name":"Libsyn","provider_url":"https:\/\/www.libsyn.com","height":90,"width":600,"title":"Otec Michal: \u017eivot s krehk\u00fdm X","description":"Krehk\u00e9 X alebo syndr\u00f3m fragiln\u00e9ho chromoz\u00f3mu X je zriedkav\u00e9 genetick\u00e9 ochorenie, ktor\u00fdm \u0161tatisticky trp\u00ed na Slovensku asi 1000 \u013eud\u00ed. Vikt\u00f3ria Lanco\u0161ov\u00e1 priv\u00edtala v \u0161t\u00fadiu Michala - otca dvoch chlapcov, \u0160imonka a Mi\u0161ka, ktor\u00ed trpia t\u00fdmto ochoren\u00edm, a ktor\u00fd v \u00faprimnom rozhovore prezradil, ako sa \u017eije s krehk\u00fdm X. Michal opisuje ka\u017edodenn\u00fd \u017eivot ich rodiny ako samot\u00e1rsky a superorganizovan\u00fd. Hovor\u00ed o prejavoch tohto ochorenia u svojich synov, o v\u00fdzvach spojen\u00fdch s touto diagn\u00f3zou, o vhodn\u00fdch terapi\u00e1ch a v\u00fdzname v\u010dasnej intervencie. Dozviete sa tie\u017e, pre\u010do by mal ka\u017ed\u00fd \u010dlovek s poruchou autistick\u00e9ho spektra absolvova\u0165 genetick\u00e9 vy\u0161etrenie na krehk\u00e9 X, ak\u00e1 je Achillova p\u00e4ta tohto ochorenia a pre\u010do je d\u00f4le\u017eit\u00e1 podpora pre rodiny postihnut\u00e9 t\u00fdmto syndr\u00f3mom. Spolo\u010dne s man\u017eelkou Evkou zalo\u017eili ob\u010dianske zdru\u017eenie Frag X, aby \u0161\u00edrili povedomie o tomto syndr\u00f3me a sp\u00e1jali rodiny na Slovensku, ktor\u00e9 \u010delia podobn\u00fdm v\u00fdzvam. EV 157\/23\/EPP| 5. ro\u010dn\u00edk | epiz\u00f3da 06\/2025 ","author_name":"ZDRAV\u00c9 RE\u010cI","author_url":"http:\/\/zdravereci.libsyn.com\/website","html":"<iframe title=\"Libsyn Player\" style=\"border: none\" src=\"\/\/html5-player.libsyn.com\/embed\/episode\/id\/39673560\/height\/90\/theme\/custom\/thumbnail\/yes\/direction\/forward\/render-playlist\/no\/custom-color\/88AA3C\/\" height=\"90\" width=\"600\" scrolling=\"no\"  allowfullscreen webkitallowfullscreen mozallowfullscreen oallowfullscreen msallowfullscreen><\/iframe>","thumbnail_url":"https:\/\/assets.libsyn.com\/secure\/content\/197484075"}