{"version":1,"type":"rich","provider_name":"Libsyn","provider_url":"https:\/\/www.libsyn.com","height":90,"width":600,"title":"Episode 566 - Lala Juarez","description":"The Most Dangerous Phrase in Rare Disease: \u201cYou Look Fine.\u201d Diagnosed with idiopathic pulmonary arterial hypertension in her early 20s after years of being dismissed, Lala Juarez knows what it\u2019s like to be told \u201cyou look fine\u201d while fighting for breath. In this deeply honest conversation, she shares her journey from misdiagnosis and IV therapy to the shock of being told it was finally \u201ctime\u201d for a double lung transplant. Now four years post-transplant, Lala reflects on rediscovering everyday joys, navigating loss and trauma, and why support groups became a lifeline that made her feel seen, validated, and never alone. Her story is one of preparation, advocacy, resilience, and learning that healing doesn\u2019t mean going back to who you were, but becoming someone more present, empathetic, and aware that rare doesn\u2019t mean invisible.   Learn more about pulmonary hypertension trials at&amp;nbsp;www.phaware.global\/clinicaltrials. Follow us on social @phaware Engage for a cure:&amp;nbsp;www.phaware.global\/donate&amp;nbsp;#phaware  Share your story: info@phaware.global  Like, Subscribe and Follow us:  www.phawarepodcast.com. ","author_name":"I'm Aware That I'm Rare: the phaware\u00ae podcast","author_url":"http:\/\/phawarepodcast.libsyn.com\/podcast","html":"<iframe title=\"Libsyn Player\" style=\"border: none\" src=\"\/\/html5-player.libsyn.com\/embed\/episode\/id\/39557205\/height\/90\/theme\/custom\/thumbnail\/yes\/direction\/forward\/render-playlist\/no\/custom-color\/87A93A\/\" height=\"90\" width=\"600\" scrolling=\"no\"  allowfullscreen webkitallowfullscreen mozallowfullscreen oallowfullscreen msallowfullscreen><\/iframe>","thumbnail_url":"https:\/\/assets.libsyn.com\/secure\/content\/196969560"}