{"version":1,"type":"rich","provider_name":"Libsyn","provider_url":"https:\/\/www.libsyn.com","height":90,"width":600,"title":"Episode 559 - Drs. Matina Prapa and Olivier Danhaive","description":"How a Global Team Is Rewriting the TBX4 Playbook  Rare diseases thrive in isolation. TBX4Life is changing that. In this episode, Drs. Prapa and Danhaive&amp;nbsp;share how international collaboration is creating real-time change for patients. From newborn screening&amp;nbsp;to natural history studies to rethinking how we talk about genetic testing, they\u2019re helping create a roadmap to a cure.  &amp;nbsp;Learn more about pulmonary hypertension trials at&amp;nbsp;www.phaware.global\/clinicaltrials. Follow us on social @phaware Engage for a cure:&amp;nbsp;www.phaware.global\/donate #phaware #phawareMD&amp;nbsp;Share your story: info@phaware.global  Like, Subscribe and Follow us:  www.phawarepodcast.com.&amp;nbsp;@TBX4_Life  ","author_name":"I'm Aware That I'm Rare: the phaware\u00ae podcast","author_url":"http:\/\/phawarepodcast.libsyn.com\/podcast","html":"<iframe title=\"Libsyn Player\" style=\"border: none\" src=\"\/\/html5-player.libsyn.com\/embed\/episode\/id\/39556065\/height\/90\/theme\/custom\/thumbnail\/yes\/direction\/forward\/render-playlist\/no\/custom-color\/87A93A\/\" height=\"90\" width=\"600\" scrolling=\"no\"  allowfullscreen webkitallowfullscreen mozallowfullscreen oallowfullscreen msallowfullscreen><\/iframe>","thumbnail_url":"https:\/\/assets.libsyn.com\/secure\/content\/196975640"}