{"version":1,"type":"rich","provider_name":"Libsyn","provider_url":"https:\/\/www.libsyn.com","height":90,"width":600,"title":"There\u2019s Nothing New for Me in the Pipeline (Clinical Trials &amp; Patient Participation)","description":"In this episode, we take a deep dive into the state of the treatment pipeline for bleeding disorders. From the way clinical trials are structured to what\u2019s actually available for different conditions, we examine both the promise and the reality of innovation in this space. Recorded live at the NBDF Bleeding Disorders Conference, we join Mike Recht, MD, PhD, Chief Science and Medical Officer of NBDF, for a \u201cresearch posters walk &amp;amp; talk\u201d to explore what\u2019s happening right now \u2014 and why so many promising treatments never make it to market. Guests: Mike Recht, MD, PhD Maria Santaella, PhD(c), MSN, RN-BC, CPHON Samantha Carlson, LMSW &amp;nbsp; Senior Advisor: Donna DiMichele, MD &amp;nbsp; Hosted by: Patrick James Lynch &amp;nbsp; Written by: Kay Vermeil &amp;nbsp; Featured Advertiser: Sanofi &amp;nbsp; Subscribe to the Global Hemophilia Report &amp;nbsp; Show Notes: &amp;nbsp; Join Kevin as he shares about his journey with hemophilia and the hurdles he faced in communicating with friends, family, and healthcare providers about his condition. He highlights how hemophilia affects far more than just physical health \u2014 and why honest, open conversations that focus on the full patient experience, not just symptoms, are so essential. &amp;nbsp; Click here to watch his story:  https:\/\/www.youtube.com\/watch?v=3v1cCTbhClA&amp;amp;list=PLmqBxf22n4lNK82h3QZ-9YlpIjYdzDOer&amp;amp;index=5 &amp;nbsp; Sanofi\u2019s Global Hemophilia Survey uncovers significant care gaps and emotional challenges faced by patients and caregivers. Learn how improving health literacy and fostering better patient-provider communication are essential to addressing these inequities. Explore the findings and see how Sanofi is driving health equity for the hemophilia community. Explore the survey findings here:  Global Hemophilia Survey Page.   Connect with the Global Hemophilia Report Global Hemophilia Report on LinkedIn Global Hemophilia Report on X\/Twitter Global Hemophilia Report on Facebook &amp;nbsp; Connect with BloodStream Media: BloodStreamMedia.com BloodStream on Facebook&amp;nbsp; BloodStream on X\/Twitter&amp;nbsp; &amp;nbsp; ","author_name":"Global Hemophilia Report","author_url":"https:\/\/www.bloodstreammedia.com","html":"<iframe title=\"Libsyn Player\" style=\"border: none\" src=\"\/\/html5-player.libsyn.com\/embed\/episode\/id\/38329580\/height\/90\/theme\/custom\/thumbnail\/yes\/direction\/forward\/render-playlist\/no\/custom-color\/88AA3C\/\" height=\"90\" width=\"600\" scrolling=\"no\"  allowfullscreen webkitallowfullscreen mozallowfullscreen oallowfullscreen msallowfullscreen><\/iframe>","thumbnail_url":"https:\/\/assets.libsyn.com\/secure\/content\/193438650"}