{"version":1,"type":"rich","provider_name":"Libsyn","provider_url":"https:\/\/www.libsyn.com","height":90,"width":600,"title":"Bone Marrow Transplant for Sickle Cell: One Family's Cure Story","description":"In this episode of Child Life On Call, guest Maite Rodriguez shares her daughter Alessia\u2019s inspiring journey with sickle cell disease (SCD)\u2014from diagnosis at birth and painful crises to finding a cure through a pediatric bone marrow transplant at Memorial Sloan Kettering. Maite discusses the challenges of long-term treatments like hydroxyurea, the emotional toll of hospitalizations, and her family\u2019s decision to pursue IVF to create a genetic match. She also introduces her bilingual children\u2019s book, Just Like the Moon, which helps families explain sickle cell to children, siblings, and communities.   \u23f1\ufe0f Episode Timestamps 00:05 \u2013 Newborn diagnosis and the first sickle cell pain crisis 09:00 \u2013 Daily medications: penicillin, folic acid, and hydroxyurea 20:00 \u2013 How advocacy, research, and community support make a difference 25:00 \u2013 Considering a cure: bone marrow transplant and IVF journey 31:00 \u2013 Why Memorial Sloan Kettering was chosen for Alessia\u2019s transplant 41:00 \u2013 Life after transplant: cured of sickle cell, dancing in the rain 48:00 \u2013 Writing Just Like the Moon, a bilingual sickle cell book for kids \ud83d\udcda Resources Mentioned Just Like the Moon, a book written by Maite Rodriguez Sickle Cell 101 Memorial Sloan Kettering Pediatric Bone Marrow Transplant Program Sickle Cell Consortium \u2013 Resources & Advocacy Ronald McDonald House Charities \u2013 family lodging during hospital care \ud83d\udcf2 Get Support Support your child with step-by-step tips from certified child life specialists. \ud83d\udc49 Download the SupportSpot app (iOS & Android)   \ud83c\udf1f Special Thank You for Our Listeners! \ud83c\udf89 We\u2019re giving you free access to our most popular pediatric masterclasses \u2014 How to Prepare, Support, and Respond to Your Child During Shots, Blood Draws, and Vaccines and How to Use Comfort Positioning in Pediatrics \u2014 a $250 value, completely free! All you have to do is leave a written review of the Child Life On Call podcast on Apple Podcasts or Spotify, then email a screenshot of your review to podcast@childlifeoncall.com. Once we receive it, you\u2019ll get instant access to both courses \u2014 no strings attached. It\u2019s our way of saying thank you for listening and helping more parents discover our show. \ud83d\udc9b The Child Life On Call Podcast is for informational and educational purposes only. The content shared in each episode, including stories, discussions, and interviews, is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay seeking it because of something you heard on this podcast. The views and opinions expressed by guests on the Child Life On Call Podcast are their own and do not necessarily reflect those of Child Life On Call. Child Life On Call does not endorse any specific medical treatments, procedures, or opinions shared in the podcast. If you or your child is experiencing a medical emergency, call 911 or seek immediate medical attention. By listening to this podcast, you acknowledge that Child Life On Call and its affiliates are not responsible for any decisions made based on the information provided.   ","author_name":"Inside the Children's Hospital","author_url":"http:\/\/insidethechildrenshospital.com","html":"