{"version":1,"type":"rich","provider_name":"Libsyn","provider_url":"https:\/\/www.libsyn.com","height":90,"width":600,"title":"GetYourBellyOut: Picturing Hope for IBD Featuring Victoria Marie","description":"In this episode, Victoria, founder of GetYourBellyOut, shares her journey with ulcerative colitis and the importance of community support for those with inflammatory bowel disease (IBD). She discusses her diagnosis experience, the challenges of navigating healthcare, and the need for better patient advocacy. Victoria highlights the organization's growth, its initiatives like the IBD Nurse Helpline leaflets, and the significance of connecting patients with healthcare providers. She emphasizes the importance of funding to expand their services and create more opportunities for support, while also reflecting on the personal connections that drive her passion for this work. &amp;nbsp;  Topics covered on this episode:   Personal journey with ulcerative colitis and diagnosis experience   Emotional and physical challenges of living with inflammatory bowel disease (IBD)   Importance of community support and connection for individuals with chronic illnesses   Founding and evolution of the organization &quot;GetYourBellyOut&quot;   Advocacy and awareness efforts for IBD and its impact on patients   Family dynamics and the effects of IBD on relationships   Role of social media in connecting individuals with IBD   Challenges of being a public figure in the IBD community   Importance of patient feedback in improving care and resources   Future goals and initiatives for expanding support and resources for those affected by IBD   &amp;nbsp; Find GetYourBellyOut on:   Web: https:\/\/getyourbellyout.org.uk\/   Facebook: @getyourbellyout   Twitter: @getyourbellyout   Instagram: @getyourbellyout_official   LinkedIn: @getyourbellyout-cic   Tik Tok: @getyourbellyout_official   Find Amber J Tresca at:   AboutIBD.com: About IBD   Verywell: Verywell Health   Facebook: @aboutIBD   Twitter: @aboutIBD   Pinterest: @aboutibd   Instagram: @about_IBD   YouTube: @AboutIBD   Threads: @about_IBD   Find Mac Cooney (mix, sound design, and theme music) at:   Facebook: @maccooneycomposer&amp;nbsp;   Instagram: @maccooneycomposer   Web: Cooney Studio   YouTube: @MacCooneyComposer   Theme music, IBD Dance Party, is from \u00a9Cooney Studio.   &amp;nbsp; Episode transcript and more information at: https:\/\/bit.ly\/AIBD175 &amp;nbsp; These show notes may contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.  ","author_name":"About IBD","author_url":"http:\/\/aboutibd.com\/","html":"<iframe title=\"Libsyn Player\" style=\"border: none\" src=\"\/\/html5-player.libsyn.com\/embed\/episode\/id\/36623865\/height\/90\/theme\/custom\/thumbnail\/yes\/direction\/forward\/render-playlist\/no\/custom-color\/88AA3C\/\" height=\"90\" width=\"600\" scrolling=\"no\"  allowfullscreen webkitallowfullscreen mozallowfullscreen oallowfullscreen msallowfullscreen><\/iframe>","thumbnail_url":"https:\/\/assets.libsyn.com\/secure\/content\/188528735"}