{"version":1,"type":"rich","provider_name":"Libsyn","provider_url":"https:\/\/www.libsyn.com","height":90,"width":600,"title":"A Collaborative Approach to an Uncommon Cancer","description":" Imagine receiving a cancer diagnosis, only to immediately learn that not only has it spread to other parts of your body, but it\u2019s also incredibly rare for it do so\u2014so rare, in fact, that little to no research exists to inform your treatment. Katie Coleman doesn\u2019t need to imagine this: She\u2019s lived it. In December 2020, at just 29 years old, Katie was diagnosed with metastatic oncocytoma, a type of kidney cancer so rare that fewer than 10 cases have been recorded in history. Consequently, it\u2019s also remained largely understudied, underfunded, and overlooked in cancer research. Luckily, Katie found Dr. Pavlos Msaouel, an oncologist and a three-time Conquer Cancer grant and award recipient with an incredibly niche research focus: targeting rare kidney tumors. Despite a lack of research about Katie\u2019s specific type of tumor, Dr. Msaouel\u2019s experience with targeting rare kidney tumors\u2014informed by his Conquer Cancer-funded research\u2014enabled her care team to hone in on an approach that ultimately left her with no evidence of disease. Now a cancer survivor and patient advocate, Katie has made it her mission to share her story and help others learn to more effectively navigate cancer care. In this episode of Your Stories, Katie speaks with podcast host and fellow survivor Brenda Brody about what she found most helpful during her cancer experience and the empowering impact of shared decision-making between providers and patients. ","author_name":"Your Stories: Conquering Cancer","author_url":"https:\/\/www.conquer.org\/your-stories","html":"