{"version":1,"type":"rich","provider_name":"Libsyn","provider_url":"https:\/\/www.libsyn.com","height":90,"width":600,"title":"A Quality Life: Ryan's Pediatric Palliative Care Story","description":"When Dan and Meghan\u2019s 5-year old son Ryan was born with a rare genetic disorder that causes severe developmental delays\u2014they didn\u2019t know where to turn. Seizures, surgeries, and sleepless nights due to respiratory issues required constant hospital stays in the first six months of Ryan\u2019s life, which took a toll on the young parents. \u201cI spent so much time on the phone dealing with insurance companies and coordinating doctor\u2019s appointments that I wasn\u2019t able to spend quality time with my newborn,\u201d says Meghan. With their hospital over an hour away and with Ryan requiring large, heavy equipment to help with the respiratory issues, Meghan and Dan began searching for extra support as they continued to see multiple specialists. Social media research led them to a specialty that helps children and their families deal with all aspects of a serious illness. This is Ryan\u2019s palliative care story. ","author_name":"getpalliativecare's podcast","author_url":"http:\/\/getpalliativecare.org","html":"