Coping With Your Child's Diagnosis: The Mother of a Rare Disease Patient on How She Found a Supportive Community

1 rich Libsyn https://www.libsyn.com 90 600 Coping With Your Child's Diagnosis: The Mother of a Rare Disease Patient on How She Found a Supportive Community Anne Bruns’ son Ethan was diagnosed with Atypical Hemolytic Uremic syndrome (Atypical HUS), when he was just 8 years old. Anne tells us how she, Ethan and the rest of their family first reacted to the diagnosis, shares her advice for other families coping with a rare disease diagnosis, and lets us know how Ethan is doing today. www.rareshare.org Rare Genomics / RareShare Podcast Series: Ask the Expert & Patient Navigation http://www.raregenomics.org <iframe title="Libsyn Player" style="border: none" src="//html5-player.libsyn.com/embed/episode/id/6922898/height/90/theme/custom/thumbnail/yes/direction/forward/render-playlist/no/custom-color/51b6a4/" height="90" width="600" scrolling="no" allowfullscreen webkitallowfullscreen mozallowfullscreen oallowfullscreen msallowfullscreen></iframe> https://assets.libsyn.com/secure/content/22671795