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Robert Kolker: The Vanishing Family
Robert Kolker joins Carol Fitzgerald to talk about his new book, THE VANISHING FAMILY, which chronicles a nine-sibling unnamed family affected by an inherited form of frontotemporal dementia (FTD). This Bookreporter Bets On selection explores profound questions about identity, caregiving, genetic testing, and whether or not people would choose to know their fate if a hereditary disease runs in their family. FTD is frequently misdiagnosed for years as depression, schizophrenia or addiction, delaying proper care and support. Approximately 40% of these cases are inherited; the remaining 60% are sporadic. The disease typically manifests between the ages of 40 and 60. It is systematically underdiagnosed due to its behavioral (rather than memory-based) presentation. The condition's invisibility in public health frameworks means that many affected individuals, including those who are homeless, may go unidentified. Robert shares how he worked with each family member to listen to their story as he was researching and writing. Our Latest “Bookreporter Talks To” Interviews: Bonnie Garmus: https://youtu.be/36MZitg0qkI Lisa See: https://youtu.be/V3tkRy0OkVk Amanda Peters: https://youtu.be/1ZpbCHCiD38 Jonathan Santlofer: https://youtu.be/rUk_eqMBrgk Hank Phillippi Ryan: https://youtu.be/6EjQPzlBOxw Shari Lapena: https://youtu.be/AZykCEM0ojE Chris Bohjalian: https://youtu.be/VnRpBPFctY0 Nadia Hashimi: https://youtu.be/uxVRLLQY1oA Our Latest “Bookaccino Live” Book Group Events: Bruce Holsinger: https://youtu.be/wwQjtlPePBQ Wally Lamb: https://youtu.be/-eMtMznKoVE Laura Dave: https://youtu.be/RRWrSjdxyrc Lisa Ridzén: https://youtu.be/dleYdLoh0bY Patrick Ryan: https://youtu.be/keazeWK1lto Lily King: https://youtu.be/_yo2x2ZA0B0 Sign up for newsletters from Bookreporter and Reading Group Guides here: https://tbrnetwork.com/newsletters/ FOLLOW US on Facebook: https://www.facebook.com/bookreporter Website: https://www.bookreporter.com Art Credit: Tom Fitzgerald Edited by Jordan Redd Productions
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