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  <title>Recognizing Infantile Spasms: Navigating a Diagnosis as a Nurse Practitioner</title>
  <description>What happens when a pediatric nurse practitioner suddenly finds herself on the other side of diagnosis? On this week's episode of Inside the Children's Hospital, Katie Taylor sits down with Laura Forcella, a developmental pediatric nurse practitioner and mom to a son with Dup15q syndrome and epilepsy. Laura shares the deeply personal journey of recognizing her son's infantile spasms, navigating a rare disease diagnosis, and balancing life as both a medical professional and a caregiver. Laura opens up about the unique challenges of being a &amp;quot;med mom,&amp;quot; the emotional shift from provider to parent, and how her experiences have transformed the way she supports families in her own clinical practice. Together, Katie and Laura discuss the power of parental intuition, the importance of early intervention, building a village of support, and finding moments of joy amidst the complexities of caregiving. Whether you're a parent navigating a diagnosis, a healthcare professional supporting families, or someone looking for encouragement on a difficult journey, this conversation is filled with compassion, wisdom, and hope. In This Episode, You'll Learn:   Laura's path from pediatric ICU and ER nurse to developmental pediatric nurse practitioner   How she recognized the early signs of infantile spasms in her son   The diagnostic journey that led to a Dup15q syndrome diagnosis   What it's like to care for patients while navigating your own child's medical complexities   Why videos can be critical when seeking answers for concerning symptoms   The importance of trusting your instincts as a parent   How early intervention services can help while waiting for specialist appointments   The realities of balancing advocacy, caregiving, work, and self-care   Finding community through rare disease organizations and social media   How a child's diagnosis can shape and strengthen a parent's identity   Resources Mentioned:   Dup15q Alliance    Early Intervention Programs (available in every U.S. state)   Connect with Laura:   Developmental Med Mom on Instagram (@developmentalmedmom)   Connect with us!   Instagram: @childlifeoncall + @insidethechildrenshospital   Subscribe: Never miss an episode on&amp;amp;nbsp;Apple Podcasts&amp;amp;nbsp;or&amp;amp;nbsp;Spotify.   Visit&amp;amp;nbsp;insidethechildrenshospital.com&amp;amp;nbsp;to search stories and episodes easily   Leave a Review: It helps other families find us and access our resources &amp;amp;nbsp;   Medical information shared in this episode is not a substitute for professional medical advice. Please consult your care team for guidance specific to your child and family. &amp;amp;nbsp; Keywords: Infantile Spasms, Dupq15, Nurse Practitioner, Developmental Pediatrics, Seizures, Child Life Specialist, Support </description>
  <author_name>Inside the Children's Hospital | Parent Stories, Pediatric Healthcare &amp;amp; What Families Want You to Know</author_name>
  <author_url>http://insidethechildrenshospital.com</author_url>
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