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  <title>Episode 559 - Drs. Matina Prapa and Olivier Danhaive</title>
  <description>How a Global Team Is Rewriting the TBX4 Playbook  Rare diseases thrive in isolation. TBX4Life is changing that. In this episode, Drs. Prapa and Danhaive&amp;amp;nbsp;share how international collaboration is creating real-time change for patients. From newborn screening&amp;amp;nbsp;to natural history studies to rethinking how we talk about genetic testing, they’re helping create a roadmap to a cure.  &amp;amp;nbsp;Learn more about pulmonary hypertension trials at&amp;amp;nbsp;www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure:&amp;amp;nbsp;www.phaware.global/donate #phaware #phawareMD&amp;amp;nbsp;Share your story: info@phaware.global  Like, Subscribe and Follow us:  www.phawarepodcast.com.&amp;amp;nbsp;@TBX4_Life  </description>
  <author_name>I'm Aware That I'm Rare: the phaware® podcast</author_name>
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