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  <title>Chicken Soup for the Flow: stories of extreme bleeds, medical gaslighting, and HTC’s (part 1)</title>
  <description>Recorded live in session at HFM’s Conference for Women with Bleeding Disorders in Detroit, Michigan! Flow is a monthly podcast dedicated to the bleeding disorders community - in October 2025, Flowsters Sarah and Jessica spent time in Michigan to collect powerful personal stories of both medical gaslighting and health advocacy. In this recorded-live episode participants discuss their experiences with extreme symptoms, the need for narrative medicine, and the recuring lack of testing for rare conditions.&amp;amp;nbsp; Program Notes: Episode Links:   Bloodstream Media: https://www.bloodstreammedia.com/   HFM Conference for Women:  https://hfmich.org/october-3-5-2025national-conference-for-women-with-hemophilia-and-rare-factor-deficiencies/   On Burnout / Emily Nagoski:  https://www.ted.com/talks/emily_nagoski_and_amelia_nagoski_the_cure_for_burnout_hint_it_isn_t_self_care   How’s Your Flow?   We wanna know (Calendly link): https://calendly.com/flowtalk/flow-talk-period-pain-stories   Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more. &amp;amp;nbsp; Connect with BloodStream Media: Find all of our bleeding disorders podcasts on&amp;amp;nbsp; BloodStreamMedia.com BloodStream on Facebook&amp;amp;nbsp; BloodStream on Twitter&amp;amp;nbsp; BloodStream on Instagram BloodStream on TikTok BloodStream on LinkedIn &amp;amp;nbsp; Check out Believe Limited’s Other Work: Bombardier Blood: bombardierblood.com My Beautiful Stutter: mybeautifulstutter.com/ Stop The Bleeding!: stbhemo.com The Science Fair: thesciencefair.org On the Shoulders of Giants: https://www.ontheshouldersfilm.com/&amp;amp;nbsp; &amp;amp;nbsp; </description>
  <author_name>The Flow with BloodStream Media</author_name>
  <author_url>https://www.bloodstreammedia.com/flow</author_url>
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