1 rich Libsyn https://www.libsyn.com 90 600 In this episode, we’re joined by Karen Durrant, founder of the Autoinflammatory Alliance, who shares her powerful journey from a determined parent seeking a diagnosis for her child to the leader of a global patient advocacy movement. What began as a personal quest has evolved into an international network supporting thousands affected by autoinflammatory diseases. Karen discusses how her collaboration with Dr. Fatma Dedeoglu, a leading pediatric rheumatologist, helped bridge the gap between patient experience and medical research—ultimately contributing to the development of international clinical guidelines that are transforming care for rare disease patients worldwide.&amp;nbsp; Autoinflammatory Alliance Systemic Autoinflammatory Disease (SAID) Support Autoinflammatory Alliance: Coparison Chart ACR on Air https://www.rheumatology.org/Learning-Center/Publications-Communications/Podcast <iframe title="Libsyn Player" style="border: none" src="//html5-player.libsyn.com/embed/episode/id/37736995/height/90/theme/custom/thumbnail/yes/direction/forward/render-playlist/no/custom-color/006fba/" height="90" width="600" scrolling="no" allowfullscreen webkitallowfullscreen mozallowfullscreen oallowfullscreen msallowfullscreen></iframe> https://assets.libsyn.com/secure/item/37736995